rare cancers

Raising Awareness for Rare Cancers - Anal Cancer Awareness Day March 21
Raising Awareness for Rare Cancers – Anal Cancer Awareness Day March 21

Anal cancer is a rare cancer on the rise. In the EU 9.249 men and women were newly diagnosed with this cancer, in 2020

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family
March 22 is Lynch Syndrome Awareness Day

Lynch Syndrome is the most common inherited cancer syndrome in the world, with an estimation of 1 in 370 people carrying the genetic mutation.

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Recognising Rare Digestive Cancers – An Overview from our Member Organisation FAPA
Recognising Hereditary and Rare Cancers – An Overview from our Member Organisation FAPA

Rare Diseases in Focus – An Overview of FAP and Lynch Syndrome from our Belgian Member FAPA

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European Network Works to Better Quality of Life for CCA Patients
European Network Works to Better Quality of Life for CCA Patients

European Network works to better the quality of life of patients with the rare digestive cancer – CCA

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On Rare Digestive Cancers - Conference Highlights Key Cholangiocarcinoma (CCA) Patient Issues
On Rare Digestive Cancers – Conference Highlights Key Cholangiocarcinoma (CCA) Patient Issues

Digestive Cancers Europe Update – Key Issues Facing People Living with Cholangiocarcinoma as per AMMF UK Charity

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New Patient Leaflet Available for Patients with CCA and Gallbladder Cancers
New Patient Leaflet Available for Patients with CCA and Gallbladder Cancers

Trusted Information from EURACAN on Bilary Duct and Gallbladder Cancers

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EMA Approves New Treatment Option for Certain Cholangiocarcinoma Patients
EMA Approves New Treatment Option for Certain Cholangiocarcinoma Patients

Rare Digestive Cancers – EMA Approval of New Treatment Option for Certain Cholangiocarcinoma Patients

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Pasykaf Gains First Prize for EU Health Award with HPV Elimination Programme
Pasykaf Gains First Prize for EU Health Award with HPV Elimination Programme

EU Health Award recognises Digestive Cancers Europe Member Organisation PASYKAF for HPV Elimination Programme

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Eurordis launches Rare Barometer

EURORDIS, through its Rare Barometer programme, has launched a new survey on rare diseases/ rare cancers patients’ experience of treatment. The p...

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